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Information and public services for the Island of Jersey

L'înformâtion et les sèrvices publyis pouor I'Île dé Jèrri

Funding for specialist Motor Neurone Disease nurse

02 October 2023

A specialist nurse will be able to continue providing care to patients with Motor Neurone Disease in Jersey until the end of the year, thanks to funding secured by Health and Community Services.

Since March 2023, the role has been paid for by the Motor Neurone Disease Association [MNDA] in Jersey. Due to difficulties in funding, there were concerns the service would cease in October 2023, creating uncertainty for patients, carers and families.  

Health and Community Services have now secured funding until the end of the year from existing budgets. The MND Outreach Services role will also be considered for a permanent funding within HCS from January 2024.

Assistant Minister for Health and Social Services, Deputy Malcolm Ferey, said: "We are delighted to have secured funding to support this incredible service. We realise how vital this support for Islanders with Motor Neurone Disease is, and we are happy that we can continue this great work with the support of the MNDA."

Chris Bown, Chief Officer Health and Community Services said: "This valuable service will be considered as part of the HCS Financial Planning process for 2024. We hope this reassures patients, carers and families that HCS are committed to ensuring Islanders receive the specialist care."

The MND Association commented: "All of us at Motor Neurone Disease Association Jersey are delighted to learn that the future of the specialist nursing role, dedicated to those living with MND on the Island, has been secured. The number of people in Jersey with this devastating and incurable disease has nearly tripled in recent years and, since its creation three years ago, the role has transformed the care for these individuals.

"The service allows for instant help and support, and for people to feel safe in their homes, without the need for medical appointments and hospital treatment. 

"We sincerely thank both Deputy Karen Wilson [Minister for Health and Social Services] and Deputy Ferey for their efforts in securing long-term funding for the role, and we know the comfort this will give those affected by the disease on the Island is immeasurable."


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