Deaths from Cerebral Amyloid Angiopathy from 2016

​​Request 709542040​​

1) how many people have been diagnosed and also died from CAA - Cerebral Amyloid Angiopathy from 2016 - present day?

Response

The information regarding diagnosis is not held by Justice and Home Affairs, therefore Article 3 of the Freedom of Information (Jersey) Law 2011 applies.

To certify a death in Jersey a doctor is required by law to certify the condition or conditions which caused a person’s death. Once established, these conditions are then registered as ‘Cause of Death’ on a death registration.

‘Cause of Death’ sets out four separate, but related, sections for the recording of these conditions as follows: 

1a. The disease or condition that led to the death 

1b. Due to or as a consequence of […] 

1c. Due to or as a consequence of […] 

2. Other significant conditions contributing to the death 

A ‘Cause of Death’ must include a condition in 1a, and may include contributory conditions(s) in any of the other sections (or be blank in some sections if not relevant). ‘Cause of Death’ on a death registration therefore represents a comprehensive narrative of all the conditions that caused the death of the person. Only those conditions which caused the death are registered as a ‘Cause of Death’, I.e. not all conditions which a person suffers with at the time of death – only those that caused the death.

Cerebral Amyloid Angiopathy has been mentioned in two cases post 01/01/2017 (when digital records began):

2023

1a Intracerebral Haemorrhage

1b Suspected Cerebral Amyloid Angiopathy

1c –

2   –

2024

1a Multiple Pulmonary Embolism

1b Recurrent Cerebrovascular Accidents (Cerebral Amyloid Angiopathy)

1c –

2   –

Article Applied

Article 3 - Meaning of “information held by a public authority”

For the purposes of this Law, information is held by a public authority if –

(a)     it is held by the authority, otherwise than on behalf of another person; or

(b)     it is held by another person on behalf of the authority.​